Resources

The Turner Syndrome Foundation, Inc. website(s) is designed for educational purposes only and is not intended to serve as medical advice. The information provided on this site should not be used for diagnosing or treating a health problem or disease. It is not a substitute for professional care. If you have or suspect you may have a health problem, you should consult your health care professional.

Turner - Know Your Body - A Digital Information Book on Turner Syndrome edited by Claus. H. Gravholt

Turner Growth Chart

NIH Clinical Care Guidelines for Turner Syndrome - 2007

Strategies to Prevent Delayed Diagnosis in Turner Syndrome by Chayim Y. Newmark, MD

RESOURCES

Patient
Physician
Educator
Researcher
Linked Sites
White Papers
Books, DVD's and more
Frequently Asked Questions
Contact Us

Patient

You may find the following resources about Turner syndrome helpful. These materials are written for the general public.

MedlinePlus - Health information
GARD - Genetic and Rare Diseaese Information
NIH - National Institutes of Health Eunice Kennedy Shriver
 

Provider

You may also be interested in these resources, which are designed for healthcare professionals and researchers.

ClinicalTrials.gov - Linking patients to medical research
PubMed - Recent literature
 

Educator

ADHD
NonVerbal Learning Disability

 

• Center for Interdisciplinary Brain Sciences Research
• Coriell Institute
• Endocrine Disrupter Screening Program 
• Eunice Kennedy Shriver National Institue of Child Health and Human Development
• Genetic and Rare Diseases Information Center
• National Human Genome Research Institute
• The Endocrine Society
• UNC School of Medicine

News

Turner Syndrome in the news, see TS News

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Media

Announcements
Articles
Newsletter
Videos
Books



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Linked Sites

Disclaimer
TSF does not endorse, control, or take responsibility for the broad content of these linked sites. If you would like to add a site to this listing, please email info@tsfusa.org with your suggestion.

Aging Women
Cancer
Cardio Vascular Disease
Chronic/Autoimmune Disease
Clinical Research
Education
EmpowHER
Endocrinology
Fitness and Physical
General Support
Genetics
Hormone Reimbursement Assistance
Musculoskeletal Health
Neurology and Mental Health
Oral Health
Pharmaceutical
Psychology
Reproductive Health
Social Work
Urinary and Kidney
Women's Health Resources

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Aging Women

• Alliance for Aging Research
• North American Menopause Society

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Cardio and Vascular Disease

• American College of Cardiology
• American Heart Association
• American Stroke Association
• National Heart, Lung, and Blood Institute
• National Stroke Association
• WISEWOMAN
 CDC Campaign 
• WomenHeart

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Education

• Individuals with Disabilities Education Act 
• Learning Disabilities Online 
• National Association of School Psychologists 
• National Association of Social Workers 
• National Dissemination Center for Children with Disabilities
• Stop Bullying 
• U.S. Department of Education
• Wright's Law

Endocrinology
 

• American Association of Clinical Endocrinologists
• American Thyroid Association
• Endocrine Disrupter Screening Program
• The Hormone Foundation

• Pediatric Endocrine Society 
• Pediatric Endocrinology Nursing Society
• Society for Reproductive Endocrinology and Infertility

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Musculoskeletal Health

• American Academy of Orthopaedic Surgeons
• Arthritis Foundation
• National Institute of Arthritis and Musculoskeletal and Skin Diseases
• NIH Osteoporosis & Related Bone Disease National Resource Center
• National Osteoporosis Foundation

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Neurology and Mental Health

• Alzheimer's Association
• American Psychiatric Association
• American Psychological Association
• Anxiety Disorders Association of America
• Center for Women's Mental Health
• Epilepsy Foundation
• National Alliance on Mental Illness
• National Institute of Mental Health
• National Mental Health Association
• National Sleep Foundation

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Oral Health

• American Dental Association
• TMJ Association

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Professional Member Organization

• American Academy of Audiology
• American Academy of Dermatology
• American Academy of Pediatrics 
• American Medical Association
• American College of Obstetricians and Gynecologists
• American Society of Plastic Surgeons
• American Gastroenterological Association
• NAPNAP
• National Association of School Psychologists 
• National Association of Social Workers 
• Pediatric Endocrine Nursing Society
• American Osteopathic Association

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Reproductive Health

• American Society for Reproductive Medicine
• Association of Reproductive Health Professionals
• National Institute of Child Health and Human Development
• Planned Parenthood Federation of America
• Resolve: The National Infertility Association
• Society for Reproductive Endocrinology and Infertility
• International Society for the Study of Women's Sexual Health
• National Center for HIV, STD & TB Prevention, Centers for Disease Control
• National Institute of Allergy and Infectious Diseases

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Urinary and Kidney

• American Urogynecologic Society
• American Urological Association
• Interstitial Cystitis Association
• National Association for Continence
• The Simon Foundation for Continence

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Cancer

• American Cancer Society

Breast Cancer

• Breastcancer.org
• Life ABC (Life After early Breast Cancer)
• Living Beyond Breast Cancer
• Public Health Degree
• Susan G. Komen Breast Cancer Foundation

Gynecologic Cancer

• Cervical Cancer Clearinghouse

• Cervical Cancer-Free America (CCFA)
• National Cervical Cancer Coalition
• Partnership to End Cervical Cancer (PECC)
• College of American Pathologists
• Foundation for Women's Cancer
• Johns Hopkins Ovarian Cancer Website
• Ovarian Cancer National Alliance
• Society of Gynecologic Oncology

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Chronic Illness
Autoimmune Diseases 

• American Autoimmune Related Diseases Association, Inc.
• American College of Rheumatologists
• American Diabetes Association
• Arthritis Foundation
• Celiac Disease Foundation
• Crohn's and Colitis Foundation of America
• Lupus Foundation of America
• Lymphatic Research Foundation
• Lymphatic Education & Research Network
• National Diabetes Education Program
• National Institute of Arthritis and Musculoskeletal and Skin Diseases
• National Institute of Diabetes & Digestive & Kidney Diseases
• National Organization for Rare Disorders

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Fitness and Physical Therapy

• American Physical Therapy Association
• President's Council on Fitness, Sports & Nutrition
• The Section On Women's Health of the American Physical Therapy Association
• womenshealth.gov Physical Activity

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Pharmaceuticals

• American Pharmacist Association
• National Council on Patient Information and Education (NCPIE)
• Novo Nortis - Novo Med Link• Partnership for Prescription Assistance (PPA)
• US Food and Drug Administration

They offer a single point of access to more than 475 public and private programs, including nearly 200 offered by pharmaceutical companies. We have already helped millions of Americans get free or reduced-cost prescription medicines.

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Genetics
• Genetics Home Reference
 U.S. National Library of Medicine

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Agencies/Resources
Community/Assistance/Support

• America's Health Insurance Plans
• Patient Services, Inc. (PSI)

• American Medical Women's Association
• CDC-Women's Health (Centers for Disease Control and Prevention)
• Family Caregiving Resource
• Human Growth Foundation
• MayoClinic.com 
• Magic Foundation
• Medicare
• MedlinePlus (National Library of Medicine, NIH)
• Morgan's Wonderland - Accessible Entertainment
• National Center for Family/Professional Partnerships
• National Institute of Health
• National Library of Medicine's Health Services/Technology Assessment
• Pub Med
• Social Security 
• State Children’s Health Insurance Program (SCHIP)
• The Arc

Education

• Individuals with Disabilities Education Act 
• Learning Disabilities Online
• LD Online
• National Association of School Psychologists 
• National Association of Social Workers 
• Stop Bullying 
• U.S. Department of Education
• Wright's Law 
 

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Contact Us

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